Examinando por Autor "Fernández-Gómez, Gemma"

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Influence of Clinical and Sociodemographic Variables on Health-Related Quality of Life in the Adult Population with Long Covid
(MDPI, 2023-06-22) Rodríguez-Pérez, Mª Pilar; Sánchez-Herrera-Baeza, Patricia; Rodríguez-Ledo, Pilar; Huertas-Hoyas, Elisabet; Fernández-Gómez, Gemma; Montes-Montes, Rebeca; Pérez-de-Heredia-Torres, Marta
Worldwide, about 10 percent of patients affected by long COVID require appropriate followup and intervention. The main objective of this study was to analyze the long-term impact of mild long COVID in the adult population, and to determine the effect of clinical and sociodemographic variables on health-related quality of life in those affected. Methods: A cross-sectional descriptive study of a sample of Spanish adult patients with persistent COVID-19 symptoms at least three months after diagnosis. Data collection took place between April and July 2021. The health-related quality of life of the sample was low, with worse results in the physical component summary (PCS) 24.66 (SD = 4.45) compared to the mental component summary (MCS) 45.95 (SD = 8.65). The multiregression analysis showed significant differences by sex in the dimensions of physical functioning (p = 0.040); bodily pain (p = 0.036); and health transition (p = 0.018). Additionally, a longer time since infection had a significant effect on physical functioning (p = 0.039); general health (p = 0.037); vitality (p = 0.034); and general health transition (p = 0.002). The effect of occupational imbalance was significant for all dimensions. Conclusions: people with long COVID have a reduced quality of life. Sex, time since infection, and occupational imbalance are predictors of a worse quality of life.
Living with and managing seizures among parents of children diagnosed with Phelan-McDermid syndrome a qualitative study using in-depth interviews
(Springer, 2023) García-Bravo, Cristina; Martínez-Piédrola, Rosa María; García-Bravo, Sara; Rodríguez-Pérez, María Pilar; San-Martín-Gómez, Ana; Fernández-Gómez, Gemma; Palacios-Ceña, Domingo
To describe the experience of parents of children diagnosed with Phelan-McDermid syndrome (PMS) in relation to epileptic seizures and/or convulsions, their daily management and impact on family life. A qualitative descriptive study was conducted. The study included parents of children diagnosed with PMS by a medical specialist. Purposive sampling was used, and data were collected via in-depth interviews. A thematic analysis was performed on the data. This study was conducted according to the Standards for Reporting Qualitative Research. Thirty-two parents were recruited. Four themes were identified: (a) the first epileptic seizure, where the first seizure appears abruptly and unexpectedly; (b) living with seizures, seizures generate high concern about the evolution of the disease and the future of children with PMS; (c) treatment of epileptic seizures, obtaining an adequate treatment is a long process that involves decision making by parents; (d) the impact of epilepsy on the family, where there is a change in the functioning and relationships among family members. Conclusions: It is necessary to develop programs where parents can discuss treatment decisions with professionals and provide coping strategies for the management of epilepsy and seizures.