Examinando por Autor "Pérez-de-Heredia-Torres, Marta"

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Alterations in dexterity and manual function in patients with focal hand dystonia.
(Neurología (English Edition) ELSEVIER, 2022-09) Huertas-Hoyas, Elisabet; Martínez-Piédrola, Rosa Mª; Sánchez-Herrera-Baeza, Patricia; Serrada Tejeda, Sergio; Máximo-Bocanegra, Nuria; Sánchez Camarero, Carlos; Pérez-de-Heredia-Torres, Marta; Martínez Castrillo, Juan Carlos
Introduction: Focal hand dystonia is a movement disorder whose symptoms cause alterations in the performance of tasks requiring a high level of dexterity. Currently, there is no model for interpreting the disease and few studies have identified the difficulties of patients with dystonia in carrying out activities of daily living (ADL). This study aims to describe manipulative dexterity and its influence on ADLs in patients with focal hand dystonia. Materials and methods: We performed an observational, cross-sectional, case-control study including 24 participants (12 patients with focal hand dystonia and 12 controls). The patients were referred by the neurology department of Hospital Ramón y Cajal. We gathered sociodemographic data, as well as retrospective clinical data for patients. We subsequently administered evaluation tests, in the following order: Nine-Hole Peg Test (NHPT), Box and Blocks Test (BBT), Purdue Pegboard Test (PPT), and Jebsen-Taylor Test of Hand Function (JTTHF). Results: The study sample included a total of 24 participants, 7 women and 17 men, with a mean age (standard deviation) of 50.79 (14.40) years. In the patient group, neuromuscular involvement or psycho-emotional problems were not detected in half of cases; smaller numbers of patients presented difficulties associated with the right shoulder (25%) and anxious state (33.3%). Conclusions: Our results indicate that focal hand dystonia affects manipulative dexterity in these patients, who showed poorer performance and required more time to complete the tasks.
Cultural adaptation and psychometric properties of the Jefferson empathy scale health professions students’ version in Spanish Occupational therapy students
(BMC, 2021-09-06) Serrada-Tejeda, Sergio; Sánchez-Herrera-Baeza, Patricia; Rodríguez-Pérez, Mª Pilar; Máximo-Bocanegra, Nuria; Martínez-Piédrola, Rosa M; Trugeda-Pedrajo, Nuria; Huertas-Hoyas, Elisabet; Pérez-de-Heredia-Torres, Marta
Background: In occupational therapy, empathy is a fundamental concept and has a positive impact on health and quality of care outcomes for patients. It is a basic and essential concept that should prevail in the training of occupational therapy students. The aim of this study is to validate and cross-culturally adapt the Jefferson Medical Empathy Scale, version for health professionals (JSE-HPS) in a sample of Spanish university students of occupational therapy. Methods: A cross-sectional descriptive study was conducted between 2019 and 2020. A convenience sample was selected, consisting of 221 students from the four courses of the Occupational Therapy degree at the Universidad Rey Juan Carlos during the 2019–20 academic year. Each of the participants voluntarily and anonymously completed a sociodemographic data sheet (including age and sex), in addition to the following assessment scales: JSE-HPS and the Interpersonal Reactivity Index (IRI). Results: A culturally adapted version of the JSE-HPS that guarantees conceptual and grammatical equivalence specific to the study population was obtained. The psychometric analysis of the translated version showed a Cronbach coefficient α of 0.786. The test-retest reliability analysis showed an intraclass correlation coefficient of 0.90 (95% CI = 0.86–0.93; p < 0.0001). Confirmatory factor analysis (CFA) showed positive results (χ2 = 269.095, df = 167, p < 0.001, Confirmatory Fit Index [CFI] = 0.90, Root Mean Square Error of Approximation [RMSEA] = 0.04). Conclusion: The cultural adaptation and psychometric results suggest that the Spanish version of the JSE-HPS is a valid and reliable way to evaluate the empathic ability of occupational therapy students.
Descripción de la afectación de la destreza y función manual en pacientes con distonía focal de la mano
(Elsevier España S.L.U, 2023-01) Huertas-Hoyas, Elisabet; Martínez-Piédrola, Rosa M; Sánchez-Herrera-Baeza, Patricia; Serrada-Tejeda, Sergio; Máximo-Bocanegra, Nuria; Sánchez-Camarero, Carlos; Pérez-de-Heredia-Torres, Marta; Martínez-Castrillo, Juan Carlos
We performed an observational, cross-sectional, case-control study including 24 participants (12 patients with focal hand dystonia and 12 controls). The patients were referred by the neurology department of Hospital Ramón y Cajal. We gathered sociodemographic data, as well as retrospective clinical data for patients. We subsequently administered evaluation tests, in the following order: Nine-Hole Peg Test (NHPT), Box and Blocks Test (BBT), Purdue Pegboard Test (PPT), and Jebsen-Taylor Test of Hand Function (JTTHF).The study sample included a total of 24 participants, 7 women and 17 men, with a mean age (standard deviation) of 50.79 (14.40) years. In the patient group, neuromuscular involvement or psycho-emotional problems were not detected in half of cases; smaller numbers of patients presented difficulties associated with the right shoulder (25%) and anxious state (33.3%).
Effects of Intensive Vibratory Treatment with a Robotic System on the Recovery of Sensation and Function in Patients with Subacute and Chronic Stroke: A Non-Randomized Clinical Trial
(MDPI, 2022-06-21) Rodríguez-Pérez, Mª Pilar; Sánchez-Herrera-Baeza, Patricia; Cano-de-la-Cuerda, Roberto; Camacho-Montaño, Lucia Rocío; Serrada-Tejeda, Sergio; Pérez-de-Heredia-Torres, Marta
Background: Sensory–motor deficits are frequent and affect the functionality after stroke. The use of robotic systems to improve functionality and motor performance is advisable; therefore, the aim of the present study was to evaluate the effects of intensive, high-frequency vibration treatment administered with a robotic system in subacute and chronic stroke patients in terms of upper limb sensitivity, motor function, quantity and quality of movement, and quality of life. Methods: A simple-blind, non-randomized controlled trial was conducted. The control group received conventional rehabilitation treatment and the experimental group received robotic treatment with an Amadeo® robot in addition to their conventional rehabilitation sessions. Results: Intragroup analysis identified significant improvements in the experimental group in hand (p = 0.012), arm (p = 0.018), and shoulder (p = 0.027) sensitivity, as well as in motor function (FMA-UEmotor function, p = 0.028), integration of the affected limb (MAL-14amount scale, p = 0.011; MAL-14How well scale, p = 0.008), and perceived quality of life (SIS-16, p = 0.008). The measures between the control and experimental groups showed statistically significant differences in motor performance and spontaneous use of the affected limb (MAL-14amount scale, p = 0.021; MAL-14How well scale, p = 0.037). Conclusions: Intensive, high-frequency vibration with a robotic system, in combination with conventional intervention, improves the recovery of upper limb function in terms of quantity and quality of movement in patients with subacute and chronic stroke.
Empathy in occupational therapy students: a cross- sectional study at a Spanish university
(BMJ PUBLISHING GROUP, 2022-04-26) Serrada-Tejeda, Sergio; Martínez-Piédrola, Rosa M; Huertas-Hoyas, Elisabet; Máximo-Bocanegra, Nuria; Trugeda-Pedrajo, Nuria; Rodríguez-Pérez, Mª Pilar; Sánchez-Herrera-Baeza, Patricia; Pérez-de-Heredia-Torres, Marta
Introduction Empathy is an important interpersonal skill and a fundamental component in the professional–patient relationship, being the basis for implementing person-centred practice. In several studies, a decrease in empathy levels throughout training in medicine, nursing or dentistry, among others, has been shown. There are few studies on the occupational therapy branch of healthcare. The aim was to determine the degree of empathy perceived by students of occupational therapy at a Spanish university, as well as to analyse the differences between empathy levels according to the different degree courses and gender. Methods A descriptive cross-sectional study was designed with a sample of 221 occupational therapy students from a Spanish university. The Davis Interpersonal Reactivity Index (IRI) and the Jefferson Scale of Empathy-Health Profession Student’s Spanish version (JSPE-HPS-S) were used as outcome measures. Results According to the results found, high level of empathy was found on all dimension of the IRI (69.84 (9.80)) and the JSPE-HPS-S (122 (94–140)). Although high levels of empathy among occupational therapy students are observed in all degree courses, no significant differences were found between them. Statistically significant differences and a moderate effect size (r) were found between the variables according to the gender of the participants, with females showing greater empathy in the overall scores of the IRI as well as in the JSPE-HPS-S (p=0.002, r=0.212; p=0.001, r=0.327, respectively). Conclusions Empathy is an essential competence for the development of quality occupational therapy practice. According to the results and although occupational therapy students showed high levels of empathy, it is important to pay attention to the evolution of empathy and to provide students with learning experiences that prevent its possible decline.
Headaches and Dizziness as Disabling, Persistent Symptoms in Patients with Long COVID-A National Multicentre Study
(MDPI, 2022-10-06) Rodríguez-Pérez, Mª Pilar; Sánchez-Herrera-Baeza, Patricia; Rodríguez-Ledo, Pilar; Serrada-Tejeda, Sergio; García-Bravo, Cristina; Pérez-de-Heredia-Torres, Marta
Background: Currently, about 15% of coronavirus disease-19 (COVID-19) patients are affected by Long COVID worldwide; however, this condition has not yet been sufficiently studied. The aim of this study was to identify the impact of symptom persistence as well as clinical and socio-demographic variables in a cohort of people with Long COVID. Methods: We conducted a descriptive cross-sectional study of a sample of adult patients from different Spanish regions presenting with Long COVID. Data collection was conducted between April and July 2021. Functional status and dependency were assessed. Results: A multivariate linear regression was performed, and the model was statistically significant (F (7; 114) = 8.79; p < 0.001), according to the overall ALDQ score. The variables with a statistically significant effect on the degree of dependence were age (p = 0.014), time since diagnosis (p = 0.02), headaches (p = 0.031), and dizziness (p = 0.039). Functional status post-COVID showed a positive and significant relationship with the percentage of dependence (p < 0.001). Conclusions: People affected by Long COVID showed moderate dependency status and limitations in functionality. Those with neurological symptoms, such as dizziness and headaches, as well as older age, showed a higher degree of dependency. Improvements in dependency status occurred with increasing time since diagnosis.
How Do Motor and Sensory Function Correlate with Daily Performance Recovery after Post-Stroke Robotic Intervention? A Secondary Analysis of a Non-Randomized Controlled Trial
(MDPI, 2023-03-10) Rodríguez-Pérez, Mª Pilar; Sánchez-Herrera-Baeza, Patricia; Montes-Montes, Rebeca; Cano-de-la-Cuerda, Roberto; Martínez-Piédrola, Rosa Mª; Serrada-Tejeda, Sergio; Obeso-Benítez, Paula; Pérez-de-Heredia-Torres, Marta
New technologies have been developed to complement conventional interventions to better target the specific needs of people with stroke, and they have been shown to improve both function and performance. However, it is unknown whether the baseline levels of sensorimotor function and performance interrelate with the improvement in upper limb and daily performance. Thus, the aim of this study was to examine the relationship between baseline levels of sensorimotor function and daily performance and its impact on post-intervention improvement in people with stroke following a robotic intervention. A single-blind, non-randomized, controlled clinical trial was conducted. Participants in the experimental group (n = 9) received a robotic intervention in addition to conventional treatment. Sensorimotor function was measured with Semmes-Weinstein Monofilaments® and the Fugl-Meyer Assessment Upper Extremity Scale. Upper limb and daily performance were measured with the MAL and SIS-16 scales. The multivariate regression models showed that baseline levels of upper limb performance and motor function predicted >95% of the variance in upper limb performance (p < 0.001), while pre-intervention levels of daily performance explained >75% of the post-intervention variance (p < 0.05). These findings indicate that basal upper limb motor function is associated with improved performance following a combined intervention of conventional treatment and robotic intervention
Influence of Clinical and Sociodemographic Variables on Health-Related Quality of Life in the Adult Population with Long Covid
(MDPI, 2023-06-22) Rodríguez-Pérez, Mª Pilar; Sánchez-Herrera-Baeza, Patricia; Rodríguez-Ledo, Pilar; Huertas-Hoyas, Elisabet; Fernández-Gómez, Gemma; Montes-Montes, Rebeca; Pérez-de-Heredia-Torres, Marta
Worldwide, about 10 percent of patients affected by long COVID require appropriate followup and intervention. The main objective of this study was to analyze the long-term impact of mild long COVID in the adult population, and to determine the effect of clinical and sociodemographic variables on health-related quality of life in those affected. Methods: A cross-sectional descriptive study of a sample of Spanish adult patients with persistent COVID-19 symptoms at least three months after diagnosis. Data collection took place between April and July 2021. The health-related quality of life of the sample was low, with worse results in the physical component summary (PCS) 24.66 (SD = 4.45) compared to the mental component summary (MCS) 45.95 (SD = 8.65). The multiregression analysis showed significant differences by sex in the dimensions of physical functioning (p = 0.040); bodily pain (p = 0.036); and health transition (p = 0.018). Additionally, a longer time since infection had a significant effect on physical functioning (p = 0.039); general health (p = 0.037); vitality (p = 0.034); and general health transition (p = 0.002). The effect of occupational imbalance was significant for all dimensions. Conclusions: people with long COVID have a reduced quality of life. Sex, time since infection, and occupational imbalance are predictors of a worse quality of life.
Influence of Ideational Praxis on the Development of Play and Adaptive Behavior of Children with Autism Spectrum Disorder: A Comparative Analysis
(MDPI, 2021-05-26) Serrada-Tejeda, Sergio; Santos-Del-Riego, Sergio; May-Benson, Teresa A; Pérez-de-Heredia-Torres, Marta
Background: Traditionally, assessment of praxis skills in children with ASD has focused on the evaluation of aspects related to the planning and execution of actions. This study aimed to evaluate the ideational abilities of children with ASD and analyze possible relationships with the development of play and adaptive behaviors. Methods: 40 children between 4 to 6 years (TD = 20; ASD = 20) were evaluated with the Test of Ideational Praxis, the Revised Knox Preschool Play Scale, and the Adaptive Behavior Assessment System II. Results: Statistically significant relationships were obtained between ideational praxis and play skills development (r = 0.649; p = 0.01), adaptive leisure behavior (r = 0.338; p = 0.04) and social adaptive behavior (r = 0.319; p = 0.04). Results of multiple linear regression models found a linear relationship between ideational praxis and play development (p = 0.005) and adaptive leisure skills (p = 0.004), but not with social interaction skills (p > 0.05). Conclusions: Objective evaluation with a specific ideational praxis assessment facilitates understanding of the ideational abilities and widens understanding of praxis skills and their impact on play and adaptive behaviors in children with ASD.
Is the association between health-related quality of life and fatigue mediated by depression in patients with multiple sclerosis? A Spanish cross-sectional study
(BMJ Open, 2018-01-23) Cigarán-Méndez, Margarita; Navarro-Pardo, Esperanza; Parás-Bravo, Paula; Pérez-de-Heredia-Torres, Marta; Fernandez- Muñoz, Juan J; Fernández-de-Las-Peñas, Cesar
Objectives: To determine the mediating effects of depression on health-related quality of life and fatigue in individuals with multiple sclerosis (MS). Design: A cross-sectional study. Setting: Tertiary urban hospital. Participants: One hundred and eight patients (54% women) with MS participated in this study. Outcome measures: Demographic and clinical data (weight, height, medication and neurological impairment), fatigue (Fatigue Impact Scale), depression (Beck Depression Inventory-II) and health-related quality of life (Short-Form Health Survey 36) were collected. Results: Fatigue was significantly associated with bodily pain, physical function, mental health and depression. Depression was associated with bodily pain and mental health. The path analysis found direct effects from physical function, bodily pain and depression to fatigue (all, P<0.01). The path model analysis revealed that depression exerted a mediator effect from bodily pain to fatigue (B=-0.04, P<0.01), and from mental health to fatigue (B=-0.16, P<0.01). The amount of fatigue explained by all predictors in the path model was 37%. Conclusions: This study found that depression mediates the relationship between some health-related quality of life domains and fatigue in people with MS. Future longitudinal studies focusing on proper management of depressive symptoms in individuals with MS will help determine the clinical implications of these findings.
Mental Practice and Manipulative Skills Training Among People With Multiple Sclerosis: A Pilot Study
(American Journal of Occupational Therapy, 2022-03-01) Sánchez-Herrea-Baeza, Patricia; García-Bravo, Cristina; Huertas-Hoyas, Elisabet; Florencio, Lidiane-Lima; Martínez-Piédrola, Rosa María; Pérez-Corrales, Jorge; Sánchez-Camarero, Carlos; Pérez-de-Heredia-Torres, Marta
Importance: Multiple sclerosis (MS) is a demyelinating disease of the central nervous system that produces both motor and cognitive dysfunctions. Impairments in limb function as a result of MS cause a decline in the performance of activities of daily living (ADLs). Objective: To determine whether the use of mental practice (MP) or MP combined with training in motor manipulation skills (skills training) would improve gross and fine motor skills and treatment satisfaction among people with MS. Design: Pilot study with a duration of 3 mo plus 3-mo follow-up. Setting: Two MS associations. Participants: Thirty-five patients diagnosed with MS of the relapsing–remitting and progressive secondary subtypes, ages 25 to 60 yr. Intervention: The participants were allocated to one of three groups according to their order of inclusion in the study: (1) MP, (2) MP 1 skills training, or (3) control group. The treatment protocol had a 6-wk duration and a total of 12 sessions. Outcomes and Measures: Blinded evaluators performed three assessments for each patient (pretreatment, posttreatment, and 3-mo follow-up) using the Nine-Hole Peg Test, Box and Block Test, ABILHAND, and Canadian Occupational Performance Measure (COPM). Results: We found no evidence of benefits in self-perceived performance of ADLs with respect to gross and fine motor skills; however, there was an improvement in perceived satisfaction and in the performance of activities, independent of the treatment received. Conclusions and Relevance: Perceived ADL performance and satisfaction with performance increases among people with MS when they receive MP, MP 1 skills training, and conventional rehabilitation treatment. What This Article Adds: Mental practice combined with conventional treatment could contribute to patients perceiving improved performance of ADLs. Self-reported outcome measures, such as the COPM, could provide highly valuable information about occupation performance that may not match the objective evidence.
Protocol for the Development of Automatic Multisensory Systems to Analyze Human Activity for Functional Evaluation: Application to the EYEFUL System
(MDPI, 2024-04-18) Obeso-Benítez, Paula; Pérez-de-Heredia-Torres, Marta; Huertas-Hoyas, Elisabet; Sánchez-Herrera-Baeza, Patricia; Máximo-Bocanegra, Nuria; Serrada-Tejeda, Sergio; Marron-Romera, Marta; Macias-Guarasa, Javier; Losada-Gutierrez, Cristina; Palazuelos-Cagigas, Sira E.; Martin-Sanchez, Jose L.; Martínez-Piédrola, Rosa
The EYEFUL system represents a pioneering initiative designed to leverage multisensory systems for the automatic evaluation of functional ability and determination of dependency status in people performing activities of daily living. This interdisciplinary effort, bridging the gap between engineering and health sciences, aims to overcome the limitations of current evaluation tools, which often lack objectivity and fail to capture the full range of functional capacity. Until now, it has been derived from subjective reports and observational methods. By integrating wearable sensors and environmental technologies, EYEFUL offers an innovative approach to quantitatively assess an individual’s ability to perform activities of daily living, providing a more accurate and unbiased evaluation of functionality and personal independence. This paper describes the protocol planned for the development of the EYEFUL system, from the initial design of the methodology to the deployment of multisensory systems and the subsequent clinical validation process. The implications of this research are far-reaching, offering the potential to improve clinical evaluations of functional ability and ultimately improve the quality of life of people with varying levels of dependency. With its emphasis on technological innovation and interdisciplinary collaboration, the EYEFUL system sets a new standard for objective evaluation, highlighting the critical role of advanced screening technologies in addressing the challenges of modern healthcare. We expect that the publication of the protocol will help similar initiatives by providing a structured approach and rigorous validation process.
Sensory processing and adaptive behavior in Phelan-McDermid syndrome: a cross-sectional study
(Springer, 2022) Serrada-Tejeda, Sergio; Cuadrado, María-Luz; Martínez-Piédrola, Rosa Mª; Máximo-Bocanegra, Nuria; Sánchez-Herrera-Baeza, Patricia; Camacho-Montaño, Lucía Rocío; Pérez-de-Heredia-Torres, Marta
Phelan-McDermid syndrome (PMS) is a genetic disorder caused by a mutation or deletion of the SHANK3 gene (chromosome 22q13.3), characterized by diferent sensory processing anomalies. The objective of this study is to expand and provide a detailed defnition of the sensory profle of patients with PMS. The secondary objective was to examine the relationship between sensory patterns and adaptive behavior. A cross-sectional study was carried out among 51 Spanish patients with a confrmed genetic diagnosis of PMS. All the participants’ parents completed the Short Sensory Profle-Spanish (SSP-S) and the Adaptive Behavior Assessment System II (ABAS-II). Correlational, multiple regression and hierarchical cluster analyses were performed. An atypical sensory profle was identifed in almost 75% of PMS patients. Defnite diferences were found among scores; nonetheless, sub-threshold values were observed in tactile sensitivity, underresponsive/seeks sensation, auditory fltering, and low energy/weak sensory categories. Conceptual, social, and practical domains, as well as the General Adaptive Composite (GAC) of the ABAS-II showed extremely low scores (i.e., <70). Signifcant correlations were found (p<0.005) between SSP-S scores and the conceptual, social, practical, and GAC index of the ABAS-II, whereby higher SSP-S scores were associated with better skills and higher adaptive performance. The cluster analysis indicated that the group with the largest mutation size (7.23 Mb) showed the greatest sensory processing difculties and very low adaptive skills. Conclusions: Patients with PMS show an atypical sensory profle, which correlates with limitations in general adaptive behaviors.
Social and Family Challenges of Having a Child Diagnosed with Phelan-McDermid Syndrome: A Qualitative Study of Parents’ Experiences
(MDPI, 2022) García-Bravo, Cristina; Palacios-Ceña, Domingo; García-Bravo, Sara; Pérez-Corrales, Jorge; Pérez-de-Heredia-Torres, Marta; Martínez-Piédrola, Rosa María
(1) Background: Phelan-McDermid Syndrome (PMS) in children causes significant challenges affecting social and family relationships. The purpose of this study was to explore the experience of parents with children diagnosed with PMS regarding interactions with their social environment; (2) Methods: A qualitative descriptive study was conducted. Participants were recruited using non-probabilistic purposeful sampling. In total, 32 parents of children with PMS were included. In-depth interviews and researchers’ field notes were used to collect the data. An inductive thematic analysis was performed; (3) Results: Five themes were identified: (a) challenges in the relationship as a couple; (b) challenges within the family and close social relationships; (c) challenges in the educational-school environment; (d) challenges in the health environment and with health professionals, and (e) reconnection through the PMS association. It would be beneficial for parents to create training programs on PMS in the educational and healthcare settings, to promote the participation of professionals in the PMS association and to develop care programs focusing in their physical, psychological and social health.
Spanish Cultural Adaptation and Inter-Rater Reliability of the Revised Knox Preschool Play Scale
(MDPI, 2023-05-29) Serrada-Tejeda, Sergio; Pérez-de-Heredia-Torres, Marta; Knox, Susan H.; Sánchez-Herrera-Baeza, Patricia; Martínez-Piédrola, Rosa M; Obeso-Benítez, Paula; Santos-del-Riego, Sergio E.
Background: The Revised Knox Preschool Play Scale (RKPPS) is a comprehensive assessment test that observes the level of play development; however, there is no culturally adapted version available with stable psychometric values that would allow its widespread use and provide objective information during clinical evaluations. Methods: Cross-cultural adaptation included direct and retrospective translations, along with cognitive interviews with pediatric occupational therapists to analyze the comprehensibility of the translation. In addition, a final phase of linguistic revision was carried out to determine the grammatical and semantic fit of the adapted version. Finally, inter-rater reliability was analyzed in a sample of typically developing children aged four to six years old. Results: The processes of translation and back-translation, cognitive interview, and linguistic review determined an adequate grammatical and semantic equivalence to the Spanish cultural context. Almost perfect agreement, with values between 0.82 and 0.94, was obtained for items and play dimensions, indicating that the precision of the measurements between both evaluators was excellent. Conclusions: The cross-culturally adapted version of the RKPPS meets the necessary adjustments for the sociocultural context and can be used in the clinical practice of occupational therapy.
The Impact of Anxiety and Upper Limb Disability on Participation Levels in People with Dystonia an Observational Cross-Sectional Case-Control Study.
(Lippincott Williams & Wilkins, 2021-01-01) Martínez-Piédrola, Rosa M; Huertas-Hoyas, Elisabet; Serrada-Tejeda, Sergio; Máximo-Bocanegra, Nuria; Sánchez-Herrera-Baeza, Patricia; García-Bravo, Cristina; Pérez-de-Heredia-Torres, Marta; Martínez-Castrillo, Juan Carlos
Objective: This study sought to evaluate the level of anxiety in people with dystonia and to examine a possible relationship between the level of participation, anxiety, and functional limitations. Design: This is an observational, cross-sectional, case-control study with 12 cases of focal dystonia and 12 healthy controls aged between 18 and 75 yrs. The Hamilton Anxiety Rating Scale, the QuickDASH scale, and the Measure of Participation and Activities were used. Differences in scores and effect size were analyzed through the Student t test and Cohen d test. A multiple regression model was performed to determine the relationship between variables. Results: People with dystonia obtained higher scores in the three subsections of the Hamilton Anxiety Rating Scale (total anxiety, psychiatric anxiety, and somatic anxiety; P < 0.05) and on the QuickDASH scale, together with lower scores in participation in activities of daily living of the Measure of Participation and Activities (P = 0.01). Greater upper limb disability was associated with a greater negative impact on participation in activities of daily living (P < 0.01); however, no significant relationship was found with anxiety (P > 0.05). Conclusions: This study suggests that the ability of people with dystonia to participate in society is negatively affected by the level of disability of the upper limb, but even when anxiety-age-related differences were controlled for, no relationship was found between variables.
The impact of anxiety and upper limb disability on participation levels in people with dystonia: an observational cross-sectional case-control study
(Wolter Kluwer Health, 2021-01) Martínez-Piédrola, Rosa M; Huertas-Hoyas, Elisabet; Serrada-Tejeda, Sergio; Máximo-Bocanegra, Nuria; Sánchez-Herrera-Baeza, Patricia; García-Bravo, Cristina; Pérez-de-Heredia-Torres, Marta; Martínez-Castrillo, Juan Carlos
Objective: This study sought to evaluate the level of anxiety in people with dystonia and to examine a possible relationship between the level of participation, anxiety, and functional limitations. Design: This is an observational, cross-sectional, case-control study with 12 cases of focal dystonia and 12 healthy controls aged between 18 and 75 yrs. The Hamilton Anxiety Rating Scale, the QuickDASH scale, and the Measure of Participation and Activities were used. Dif- ferences in scores and effect size were analyzed through the Student t test and Cohen d test. A multiple regression model was performed to determine the relationship between variables. Results: People with dystonia obtained higher scores in the three sub- sections of the Hamilton Anxiety Rating Scale (total anxiety, psychiatric anxiety, and somatic anxiety; P < 0.05) and on the QuickDASH scale, together with lower scores in participation in activities of daily living of the Measure of Participation and Activities (P = 0.01). Greater upper limb disability was associated with a greater negative impact on participation in activities of daily living (P < 0.01); how- ever, no significant relationship was found with anxiety (P > 0.05). Conclusions: This study suggests that the ability of people with dystonia to participate in society is negatively affected by the level of disability of the upper limb, but even when anxiety-age–related differences were controlled for, no relationship was found between variables.
Use of Wearables in Frail Institutionalized Older Adults While Ambulating in Different Environments
(MDPI, 2024-06-13) Obeso-Benítez, Paula; Martínez-Piédrola, Rosa M.; Serrada-Tejeda, Sergio; Hernández-Hernández, Lucia; García-González, Oscar; Sánchez-Herrera-Baeza, Patricia; Pérez-de-Heredia-Torres, Marta
La prolongación de la esperanza de vida suele conllevar el deterioro de la salud, la reducción de la actividad física y dependencia, especialmente en ancianos institucionalizados. La fragilidad, la obesidad, la funcionalidad limitada y el deterioro cognitivo son frecuentes. Los programas de actividad física para este grupo demográfico pueden aumentar el gasto energético semanal y mejorar la fragilidad. Comprender las diferencias entre caminar en interiores y al aire libre es crucial para adaptar los programas. El objetivo de este estudio era comparar el tiempo, el gasto energético y el esfuerzo percibido en ancianos institucionalizados que caminaban en espacios cerrados y al aire libre. También se estudió cómo el índice de masa corporal y los niveles cognitivos afectaban a estos factores. Empleando un enfoque observacional descriptivo transversal, el estudio recopiló datos sobre altura, peso, acelerómetros, la escala de Borg modificada, la prueba Timed Up and Go y el miniexamen cognitivo Lobo de una muestra de 30 adultos mayores institucionalizados. Caminar al aire libre conlleva tiempos de marcha más cortos, un mayor gasto energético y un mayor esfuerzo percibido. Las personas con sobrepeso gastan más energía ambos contextos, mientras que el deterioro cognitivo no influye significativamente en las preferencias a la hora de caminar. El estudio concluye que caminar en interiores es preferible para los ancianos frágiles debido al menor esfuerzo percibido, pero se recomienda caminar al aire libre para los individuos con sobrepeso. El estado cognitivo no influye en la elección del entorno para caminar.
"Your Life Turns Upside Down": A Qualitative Study of the Experiences of Parents with Children Diagnosed with Phelan-McDermid Syndrome
(MDPI Children, 2022-12-30) García-Bravo, Cristina; Palacios-Ceña, Domingo; Huertas-Hoyas, Elisabet; Pérez-Corrales, Jorge; Serrada-Tejeda, Sergio; Pérez-de-Heredia-Torres, Marta; Gueita-Rodríguez, Javier; Martínez-Piédrola, Rosa Mª
(1) Background: Parents of children with rare diseases experience great uncertainty and employ different strategies to care for their children and cope with the disease. The purpose of the present study was to describe the perspective of parents with children with Phelan McDermid Syndrome (PMS). (2) Methods: A non-probabilistic purposeful sampling was used to perform this qualitative descriptive study. Thirty-two parents with children with PMS were interviewed. In-depth interviews and research field notes were analyzed using an inductive thematic analysis. (3) Results: Four themes emerged from the data. "Understanding and accepting the disease" described how parents experienced their child's diagnosis and the lack of information. The second theme, called "Living day by day", highlighted the daily difficulties faced when caring for a child with PMS. The third theme, "Expectations versus reality", was based on the parents' expectations of parenthood and the reality they face. Expectations for the future are also included. Finally, "Pain and happiness" describes how parents alternate feelings of distress and suffering but also joy with what they learn from these experiences. (4) Conclusions: Health professionals can use these results to support parents.