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Fibromyalgia, Chronic Fatigue Syndrome, and Multiple Chemical Sensitivity: Illness Experiences

dc.contributor.authorAlameda-Cuesta, Almudena
dc.contributor.authorPazos-Garciandía, Álvaro
dc.contributor.authorOter-Quintana, Cristina
dc.contributor.authorLosa-Iglesias, Marta Elena
dc.date.accessioned2024-01-26T12:16:29Z
dc.date.available2024-01-26T12:16:29Z
dc.date.issued2021
dc.identifier.citationAlameda Cuesta, A., Pazos Garciandía, Á., Oter Quintana, C., & Losa Iglesias, M. E. (2021). Fibromyalgia, Chronic Fatigue Syndrome, and Multiple Chemical Sensitivity: Illness Experiences. Clinical nursing research, 30(1), 32–41. https://doi.org/10.1177/1054773819838679es
dc.identifier.issn1054-7738
dc.identifier.urihttps://hdl.handle.net/10115/29024
dc.description.abstractFibromyalgia, chronic fatigue syndrome/myalgic encephalomyelitis, and multiple chemical sensitivity can be considered contested illnesses. The questioning of the status of these conditions as real diseases reduces feelings of legitimacy in those affected. The purpose of this study was to analyze subjectivity construction processes in people with these diseases. A qualitative exploratory study was conducted from the perspective of hermeneutic phenomenology and ethnosociology. We used life stories for compiling data (13 informants were interviewed face-to-face), and sociological discourse analysis was developed. Three main categories were identified: (a) self and grieving; (b) images and practices relating to fibromyalgia, chronic fatigue syndrome/myalgic encephalomyelitis, and multiple chemical sensitivity; and (c) relationships with health professionals. This study shows that daily experiences of people living with these diseases are marked by stigmatization processes. The ultimate purpose of nursing care for people with these conditions should be to reduce their vulnerability and exclusion.es
dc.language.isoenges
dc.rightsCC BY-NC 4.0 CÓDIGO LEGAL Atribución-NoComercial 4.0 Internacional*
dc.rights.urihttps://creativecommons.org/licenses/by-nc/4.0/legalcode.es*
dc.subjectfibromyalgiaes
dc.subjectfatigue syndrome, chronices
dc.subjectmultiple chemical sensitivityes
dc.subjectqualitative researches
dc.subjectlife change eventses
dc.titleFibromyalgia, Chronic Fatigue Syndrome, and Multiple Chemical Sensitivity: Illness Experienceses
dc.typeinfo:eu-repo/semantics/articlees
dc.identifier.doi10.1177/1054773819838679es
dc.rights.accessRightsinfo:eu-repo/semantics/embargoedAccesses
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CC BY-NC 4.0 CÓDIGO LEGAL
Atribución-NoComercial 4.0 InternacionalExcept where otherwise noted, this item's license is described as CC BY-NC 4.0 CÓDIGO LEGAL Atribución-NoComercial 4.0 Internacional